Comments on: Dear Husband

By: Cherryl Leone

Cherryl Leone — Thu, 15 Sep 2016 08:18:49 +0000

Sarah, my heart aches after reading this. My eyes are full of tears. I cannot imagine the depth of pain, frustration and despair you must feel. I remember when I had chronic fatigue syndrome years ago. I was severely exhausted all the time. I remember thinking I didn’t have a personality any longer with chronic fatigue. I didn’t laugh, I didn’t get excited, I didn’t care about what others cared about. I was too tired to talk or listen. I felt like I didn’t know myself as a sick person. I felt I had lost myself. I prayed and prayed and would repeatedly tell myself “I am not my body. I am not my sickness. I am a child of God. My true, eternal Being is pure goodness, pure love and abundant energy.” None of us are who we think we are in our human form. We are so much more. I pray that your eternal true Self shine brightly to guide you in your life, and help you, especially in your difficult moments, and that the same happen for Rob. I am sending lots of love, prayers and positive energy to you both. God bless you and give you peace. Love, Cherryl

By: Susan Finnan

Susan Finnan — Sun, 11 Sep 2016 01:10:38 +0000

Kelly Murphy – I feel exactly the same way as you do. My husband passed on 2-2-16. We have two sons, 17 and 20.

I’m still angry at people who “just couldn’t handle” helping out – some family members included.. Well, I didn’t know I could handle it until I had to. My teenage sons were awesome caregivers. My husband said he would have given anything to see them grown, but he already knew what kind of men they were going to be by their daily care, all the while keeping their grades up and playing soccer.

I’ve recently talked to them about really understanding the marriage vows. I now know all about the “in sickness and in health, till death do us part”. ALS is truly one of the most horrific diseases on earth.

Sarah – I cry when I read every one of your posts. Just know that I do hold all three of you in my heart. I understand.

By: Cindy

Cindy — Sat, 10 Sep 2016 17:49:47 +0000

Beautiful post about an absolutely real love story. And I’m sorry to hear about your loss…
Have you put together a book yet? Because your posts
touch us all on so many levels. I live with a debilitating but not terminal diagnosis, and I see myself pushing on after reading your posts because you are pushing on!