Comments on: Thoughts on Death

By: Tina Flink

Tina Flink — Wed, 17 Aug 2016 11:58:25 +0000

As a fellow PALS, diagnosed 4 years ago, I feel the same sentiments exactly. Life at this base level, leaves me embracing the thought that those who succumb quickly are fortunate.

By: Kathy R.

Kathy R. — Tue, 16 Aug 2016 14:38:16 +0000

Sarah, you are truly such a strong person. I’m sure you do not feel that way most days but I’m sure everyone around you does. My husband passed away almost 20 years ago and it seems like yesterday. I still miss him so much. From diagnosis, he only lived 21 months. He could still walk but couldn’t speak, eat, etc. He loved life until the end but I’m sure he felt like a burden. He was not. I always wondered what he thought about being in this condition and you truly give me an insight to his feelings. He never let out any of those feelings but I’m sure they were there. Thank you for being so truthful and honest. Always remember that your wonderful husband and sweet little daughter will always remember these days. Eventually, they will just remember what a sweet, wonderful person you are and not the disease that defined a great portion of your life.

By: Gretchen

Gretchen — Tue, 16 Aug 2016 02:12:13 +0000

Oh Sarah,

My heart goes out to you as this horrific illness continues to steal pieces of your life every day. My husband is my caregiver, chief cook and bottle washer. Like you, I hate the loss of my ability to take care of myself, to walk, to cook and clean, and to take care of him. I can see this taking a toll on him as he battles his own health issues. I often day dream of falling asleep and not walking up. I too, am tired of being a burden, and really tired of watching others walk. Or pick up a baby/child. Or go to work!

You write so beautifully, and say what we all wish we could say. Thank you for your bravery. And the reminder that living a longer life is not as important as living a good quality of life. Living longer to love my children longer does not mean loving them better.

Sarah, please know you are so, so loved by so many. I am very sorry your relationship with Rob has been changed from him being your husband, lover, best friend, co-traveler, adventurer, to that of caretaker who is already working a full time job. And trying to parent on top of all of this? Such a lonely process for both of you. You are a beautiful woman, with a beautiful family. Thank you for sharing with us. Praying for you daily.