Comments on: A Day in the Life http://www.speed4sarah.com/day-in-the-life/?utm_source=rss&utm_medium=rss&utm_campaign=day-in-the-life LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Dougie Connor http://www.speed4sarah.com/day-in-the-life/#comment-1788 Dougie Connor Sat, 28 May 2016 08:41:04 +0000 http://www.speed4sarah.com/?p=2177#comment-1788 I only got 4 hours sleep last night so I’m tired all the time, I have a nap in the afternoon. I have Bulbar onset

]]> By: Sarah Coglianese http://www.speed4sarah.com/day-in-the-life/#comment-1779 Sarah Coglianese Tue, 24 May 2016 03:21:06 +0000 http://www.speed4sarah.com/?p=2177#comment-1779 Hi Alexis, I think it’s my daughter who makes me approachable. I’m usually with her at various classes or playgrounds and other kids get curious. Some of them just stare, of course, but I smile and say hi. You have a great smile, I can see from your blog. I’m going to go back and read more of your posts.

The caregiver piece is so hard. I have three different women who help during the week, and it does get pricey. I get some things covered by Medicare, and our insurance pays for my devices. Does your ALS clinic have a social worker who can talk to you about these things? Xo

]]> By: Alexis Crow http://www.speed4sarah.com/day-in-the-life/#comment-1778 Alexis Crow Tue, 24 May 2016 02:55:30 +0000 http://www.speed4sarah.com/?p=2177#comment-1778 Hi Sarah,
I’m not exactly sure what to say. Normally people talk to me about ALS rather than the other way around. I was diagnosed in 2013, on my 20th birthday after a year of unexplained falls and weakness, like you.
How are you so approachable? People avoid me or talk down to me. They don’t usually let their kids near me. Also, does insurance help pay for your assistant? I live with my parents, and my mom is my primary caregiver, making her roughly as homebound as me, which can be inconvenient. I hope my questions aren’t invasive.
I hope you’re well!

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