I hate ALS. I hate everything it has taken from you… and continues to take. I hate that it is getting more difficult for you to blog. I love the way you write. The way you parent. The way you keep fighting.

Along with so many others, I love you. Prayers for more time with your precious family. Every single day counts. You count.

I relate in a way to your frustration. If you do not see very well it is difficult to go shopping to the big supermarkets or even the small ones, it takes me ages to find what I look for, so I try to go always to the same one.

In any case, it is not a fair comparison, I know. You write very well and your kind spirit comes through your words, but even so, I get very upset when I read your post. What can we do?!?! If I send you a hug, most times is what I feel doing, it is so little, well, it is “sooooo” nothing… How is going to help that?

Sometimes I feel I should stop reading you. This relation is so unfair!!! You help me a lot. You have given me a lot to think about in the last year, but what I have given to you? You are a reference to me, some one to follow in this journey of being chronically ill with a small child and I cannot do anything for you… sorry…