Comments on: Guest Post: A Letter from Kristen http://www.speed4sarah.com/guest-post-a-letter-from-kristen/?utm_source=rss&utm_medium=rss&utm_campaign=guest-post-a-letter-from-kristen LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Adele Bentitou http://www.speed4sarah.com/guest-post-a-letter-from-kristen/#comment-579 Adele Bentitou Mon, 23 Feb 2015 23:15:25 +0000 http://www.speed4sarah.com/?p=1347#comment-579 Dear Kristen,
I read your letter tonight with a full heart of emotion and understanding. Your story is so overwhelming . How can I find the right words to bring comfort to your aching heart. The situation you are in is unthinkable if not surreal.
You must find the courage to go on, take care of you family and be ready for the obstacles to come. One needs a lot of strengh to deal with this horrible disease. Try to live one day at the time and not to look into the future. Making big changes in your life style should not be considered when living with ALS. Simplyfing all aspects of you routines is imperative, making your lives easier. Save all your energy and stay focus with your husband emotional and physical happenings. You need each other more than ever now.
Do not lose hope, we are fighting with all our might to see that MG 604 drug is given to patients needing treatment. A treatment that will give time to wait for a cure, I believe in it and you can too.
My best to you Kristen, I am sending you a big hug.

Adele Bentitou

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