http://www.speed4sarah.com/more-progression/?utm_source=rss&utm_medium=rss&utm_campaign=more-progression LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 http://www.speed4sarah.com/more-progression/#comment-749 Sarah Coglianese Thu, 30 Apr 2015 18:50:11 +0000 http://www.speed4sarah.com/?p=1491#comment-749 Thank you, Rebecca! Much love and strength back to you and your husband.

]]> http://www.speed4sarah.com/more-progression/#comment-748 rebecca Thu, 30 Apr 2015 18:46:45 +0000 http://www.speed4sarah.com/?p=1491#comment-748 I so appreciate your insights Sarah. I left my otherwise healthy 44 year old husband today sitting on the edge of our bed with the bipap mask on his face, hunched over trying to catch his breath and adapt to a machine to do so, the first phase of an attempt to sleep, which he has not done fully in weeks. He was only diagnosed in November, with bulbar onset. It is absolutely horrifying and completely devastating. We are near Boston and he is with the top doctor at MGH, but there is no stopping this disease, as you know. I am still trying to wrap my head around it all. I wish you strength and continued courage in your journey and thank you for sharing your personal experience.

]]> http://www.speed4sarah.com/more-progression/#comment-742 Sarah Coglianese Fri, 24 Apr 2015 03:51:49 +0000 http://www.speed4sarah.com/?p=1491#comment-742 I love you!

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