It’s Only Physical

Phasing out is only physical. It’s a fact, ALS is taking over my body physically; my nerves are slowly dying as are my muscles. It’s my reality. However, this disease will NEVER take my mind, heart, spirit, love or faith. These are all solid and thankfully, those are not controlled by nerve cells!

Don’t get me wrong, I am slowly phasing out of what I do only physically, it’s the cruelty of this disease—and sometimes the reality can be emotional. Not only am I phasing out of the insanity of our school morning routines, but I’ve already phased out of my abilities to dress myself, cook in the kitchen, do cartwheels (well, I never could do a cartwheel, but you know what I mean). I do however, participate in all of those tasks. I plan meals most nights, pick out my clothing, write love notes in their lunch boxes, read bedtime stories, and make the grocery list—heck, I even chaperoned a field trip with my kindergartner today! I am not going anywhere soon. I still “run the ship and will remain at the helm” as one posted.

My amazing friend Sarah, a fellow MALS (mom with ALS) even used my post from yesterday on her blog today —speed4sarah.com Why? Because she understood the reality of every word I said, because not only is it MY reality, it’s HER reality too and the reality every person with ALS….just phasing out physically.

Your replies to my last post were awesome and inspiring, I cried and laughed and felt so loved. I wanted to reply to each of them. Team Dewey has some amazing cheerleaders on board!! I agreed with much of what you all said, and wanted to assure you—it’s only physical. Love you all!
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