Comments on: Ramble On http://www.speed4sarah.com/ramble-on/?utm_source=rss&utm_medium=rss&utm_campaign=ramble-on LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Barbara Smith http://www.speed4sarah.com/ramble-on/#comment-1362 Barbara Smith Sat, 14 Nov 2015 12:43:31 +0000 http://www.speed4sarah.com/?p=1943#comment-1362 Our dear Sarah
We sure missed you in Boston! Jay was very touched when you referred to him and Stephen affectionately as your balding brothers. The awards were very emotional and we are all more determined to find the cure. And by the way you look great without make up. Our love to you, Rob, and Scarlett.
from Jay’s mom

]]> By: Glenda http://www.speed4sarah.com/ramble-on/#comment-1361 Glenda Sat, 14 Nov 2015 06:40:11 +0000 http://www.speed4sarah.com/?p=1943#comment-1361 I must be the only person who didn’t like Rick Steve’s Italy Travel book!
And had the chutzpah to mail it back to the publisher!
Then it landed on your desk!
What a ( pleasant) shock to get a letter from you regretting my displeasure with the book. You also enclosed several paperbacks to compensate for my unhappiness.
I understand there was then a series of phone calls ” guess who just sent Rick Steves book back” and laughs between you and my daughter!
Lovely memories of you .

]]> By: Deb http://www.speed4sarah.com/ramble-on/#comment-1360 Deb Sat, 14 Nov 2015 00:08:25 +0000 http://www.speed4sarah.com/?p=1943#comment-1360 I have been reading your blog and I admire your courage facing this disease and doing your best to make the best of everyday.

I have done some writing about ALS as well, but from a what makes sense to me that can help slow it down, so everything I read about where there is a problem with ALS, I look for what you can do to help that problem. Some people do an amazing job slowing this monster down, even reversing some of the symptoms, and others not so much, so I try and understand those differences but it is all so complicated.

You have such a delightful child and your writing about her has been truly special.

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