http://www.speed4sarah.com LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 http://www.speed4sarah.com/speed4amy/#comment-509 Adam Gracia Fri, 23 Jan 2015 15:37:55 +0000 http://www.speed4sarah.com/?page_id=1241#comment-509 Great to hear more of your story. Sorry we didn’t have much time last time you were in the lab but it was great to chat with you and your family! Stay strong!

]]> http://www.speed4sarah.com/speed4amy/#comment-506 Amy Janisse Thu, 22 Jan 2015 20:11:48 +0000 http://www.speed4sarah.com/?page_id=1241#comment-506 Thank you so much for the kind words and I’m so sorry about your daughter’s diagnosis. I am familiar with ALS TDI and just returned from participating in the PMP there a few weeks ago. Since my diagnosis, I have met so many wonderful people from all over the country who are affected by this beast of a disease. Please feel free to friend me on Facebook if you’re on there, and thank you again.

]]> http://www.speed4sarah.com/speed4amy/#comment-505 Bob Hebron Thu, 22 Jan 2015 17:21:28 +0000 http://www.speed4sarah.com/?page_id=1241#comment-505 You now have an internet family as well. My daughter, Beth, is just turning 27 and was diagnosed at age 25. She was living on her own in DC but is now home with us in NJ. We will all win this fight together. I hope you have been introduced to the folks at ALS-TDI. If not you need to get with them. I am happy to make an intro if you need.

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