Comments on: Staying Home

By: Edna Bickford

Edna Bickford — Tue, 03 May 2016 19:54:17 +0000

Hello Sarah, just started reading your posts. My heart goes out to you, I was diagnosed with Bulbar – ALS just six months ago and am going thorough many changes in my life style. So far my limbs are fairly strong but my throat and lungs are severely affected. I can no longer talk or swallow, and have great difficulty breathing. I am older than you (65), but i can relate to the anguish you must feel as a mom, I feel it with my grand children. I love being a Nana to four beautiful grandchildren, but I can no longer play with them the way they want me to because of my weak lungs and constant choking. Life goes on, and we must deal with it and stay strong for the ones we love, that’s what I keep telling myself.
Please continue with your writing, and may God bless you and your family.

By: Kristine

Kristine — Tue, 26 Apr 2016 00:07:46 +0000

I just read this and your latest post – I’m just overwhelmed by your writing. I guess as a 43 yr old mom of two young girls, I get all of your ‘mommy -isms’ – but they truly are ginormous accomplishments when you layer ALS over them.
You are hardly being a ‘downer’. Expressing your feelings is human.
Thanks for sharing those feelings – it truly puts perspective on the way I look at the world and my daily actions & family. For that, you have my gratitude. That’s the opposite of being a downer, no?
I really hope you ended up having a good weekend.

By: Sandra McDonald

Sandra McDonald — Sun, 24 Apr 2016 02:16:17 +0000

Hi Sarah, I have been following your blog for several months now and I so appreciate your searing honesty and realism in your writing about dealing with ALS. You are a very talented and inspirational writer and I hope you will continue to do so.