Comments on: The Good, The Bad, and Everything Else http://www.speed4sarah.com/the-good-the-bad-and-everything-else/?utm_source=rss&utm_medium=rss&utm_campaign=the-good-the-bad-and-everything-else LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Sarah Coglianese http://www.speed4sarah.com/the-good-the-bad-and-everything-else/#comment-449 Sarah Coglianese Tue, 06 Jan 2015 04:05:02 +0000 http://www.speed4sarah.com/?p=1147#comment-449 Elizabeth, thank you for commenting! That’s great news that you’re going to Boston. You’ll love the monitors. ;) Wishing you and your husband the best.

]]> By: Elizabeth http://www.speed4sarah.com/the-good-the-bad-and-everything-else/#comment-444 Elizabeth Tue, 06 Jan 2015 01:22:39 +0000 http://www.speed4sarah.com/?p=1147#comment-444 Hi, Sarah
I’m a new fan. 62 year old grandmother diagnosed in April 2013. my husband was diagnosed with Ahlzheimers 2 weeks before my ALS diagnosis and I am his caregiver. With my memory and his hands, we take care of each other.
I have been through all the phases you have written about and I am going to Boston in 3 weeks to participate in the clinical study.
Although we live in a wonderful retirement community in Hilton Head, I’m sure this year will bring a move back to the Midwest to be close to family. Every day is precious. We appreciate the little things so much more. God Bless you!

]]> By: Marcia http://www.speed4sarah.com/the-good-the-bad-and-everything-else/#comment-418 Marcia Tue, 23 Dec 2014 15:52:58 +0000 http://www.speed4sarah.com/?p=1147#comment-418 Thanks for writing, Sarah. My sister Kay and I both read your blog and look forward to each new entry. I just read about Vivian, another new face of ALS. It helps every time – to know we aren’t the only ones struggling with this disease. Everything that it takes away – but not our love for being together. Lots more time for reflecting and thinking about this (instead of our lives before – hiking, biking, tennis, golf). The hardest part Kay says is not being able to crawl around with her 8 month old grandson. Keep writing – you inspire us all.

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