http://www.speed4sarah.com/the-shining/?utm_source=rss&utm_medium=rss&utm_campaign=the-shining LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 http://www.speed4sarah.com/the-shining/#comment-2766 Nina Patel Sat, 03 Mar 2018 14:01:36 +0000 http://www.speed4sarah.com/?p=2593#comment-2766 Miss you much my friend. Your words and spirit are truly amazing. Sending love NYC style- I do believe someone should create an emoticon for this, but we know I’m not skilled enough to do it .

]]> http://www.speed4sarah.com/the-shining/#comment-2740 Beth Wed, 21 Feb 2018 05:04:08 +0000 http://www.speed4sarah.com/?p=2593#comment-2740 Oh Sarah, please do keep writing. Your words shine for me every time. When words shine like yours do, you raise awareness, compassion, and hope for this disease.

]]> http://www.speed4sarah.com/the-shining/#comment-2730 Jackie Fri, 02 Feb 2018 16:13:33 +0000 http://www.speed4sarah.com/?p=2593#comment-2730 Sarah, we were introduced to your blog when we teamed up with the Watts family for Team Big Sky #whatwouldyougive last August. My husband was a poet and a writer (although not as a career) and shared his experience with ALS on his blog, Markymooseinbigsky.blogspot.com. Open, honest, sometimes graphic, funny, always uplifting to friends and family who often feel so far away and helpless, you generously give your loved ones, aquaintances, strangers, people touched by ALS, anyone fortunate enough to find your words, a glimpse into your world. It means so much to so many. I was especially moved by your post titled “Redemption Song” and this one too. Thank you for writing.
On another note, if going to Arizona is something you want to do, we found a great Airbnb property in Sedona. We went there with our three sons, two caregivers and Mark last November. I will send the details to Amanda and she can share with you. Hope you are having a good day today. Thinking of you in Big Sky, Jackie

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