Comments on: Tough Talk

By: Sandra McDonald

Sandra McDonald — Wed, 25 May 2016 23:38:49 +0000

Sarah — this post is absolutely heartbreaking and touching all at once. You are not only courageous, but also are gracious and kind. Of course, I so wish that you did not have to go through this ordeal….but I do love reading your posts…and be assured that you’re an inspiration to me and your other readers

By: Ralph

Ralph — Wed, 25 May 2016 13:35:29 +0000

Hi Sarah
I have had MND/ ALS for 21 years. My kids were 4 and 2 at the time. I never worried about how other people reacted or what they said. As long as my kids knew that despite the difficulties we believed I will be around for a while.
To this day kids are always curious and want to find out what is wrong with me! The parents pull them away and often do not allow interaction. I encourage communication and always have a smile when i hear the questions. My voice is very soft so my wife and kids reply to their curiosity on my behalf.
Thank you for your posts. Keep it up and keep moving forward.
Ralph

By: Brooke

Brooke — Wed, 25 May 2016 04:14:28 +0000

Sarah, you’re so gracious. I totally get that kids are curious about death and tactless, for sure. But part of me is ready to march right up to that mom and say, Really, WTF??? This is my tactless reaction to this post, and in light of your eloquence I hate to admit all the things I want to do and say… And then there’s Scarlett, who’s having to grow up so fast. Well, her and and all her precocious friends. Bottom line is you’re amazing. I’m glad you’re going to be around for a while. We need you here.