Comments on: You’re Not You

By: Traci Winget

Traci Winget — Tue, 14 Oct 2014 13:09:05 +0000

I met a man who had been living with ALS for 8 years. His wife left him and did not let his YOUNG kids see him. The people I met due to Mark’s illness were wonderful…but he lived alone and had state caregivers come in and care for him. I was overwhelmed that this kind and caring man was living alone. I cleaned his home, and he showed me picture after picture of his younger years when he was strong and athletic and downright handsome. He sat in his recliner unable to move a muscle while using his computer to communicate with me. But OH did he smile?! The joy of the Lord showed through him in amazing ways, even though he suffered every single day.

My heart broke for him. Not everyone has a team of loving, caring folks helping them.

I barely knew him, but he impacted my life in so many ways. He passed on 8/15/13 after 9.5 years of bravely fighting this horrible disease.

May God surround you with caring and loving people, and may He comfort you with His grace.

Do you know him?

By: Donna York

Donna York — Mon, 13 Oct 2014 21:34:20 +0000

I haven’t watched it but my sister did, she said it felt more like a lifetime movie and didn’t like the ending. We lost our dad to AlS in 2009 and although he did not want any type of medical intervention he still passed away peacefully with the help of a wonderful hospice nurse and morphine.

Unfortunately I have met people with ALS who, as the disease progresses, have lost friends that just don’t know how to deal with it. We always talk about this when we screen our documentary and stress the importance of just being there for the patient and their family.

Anything that shines a light on this disease is awesome, it needs a lot more attention!

By: Erin Jones

Erin Jones — Mon, 13 Oct 2014 20:40:02 +0000

I watched this weekend. I too was struck by her lack of a support system. Her so called friends were selfish a-holes and I found myself hoping this was an extreme exaggeration if it was a true story. I thought about you and your awesome tribe of friends and family all rallying around you. Not because they have to but because they love you.