Tag Archives: mobility works


I took some Dayquil this morning, so bear with me as we go on a journey of my confused consciousness. I don’t handle medication well. Although at the moment I am very calm, slow, and sleepy, none of which are unwelcome feelings.

First off, who’s interested in what’s going on with the van lately? I know I’m not, but I’m living it, so let me just share that we still don’t have our van back. We are on our fourth rental, because they keep having to take the rentals back to service them. Right now, I think we’re driving a Toyota. Or a Dodge? Who cares. The point is that neither Mobility Works nor Braun, which is the company who converted the van, know what is wrong with it. So they will be redoing the entire conversion, an exercise that will take something like three weeks. Everyone’s being really nice about it, and we do have the rentals, so getting around has been fine. Still, I’d like to end the saga of the van and move on to something else.

I have school fundraising calls to make this morning. And I’m still working on finishing up my video for A Life Story, which involves going through photos and boxes to find appropriate items to share as part of the B roll, the stuff they flash up on the screen while you hear my voice talking about what my life used to be like. While the filmmakers were going through a box of my things, they found a gangsta rap coloring book that my former team at work had decorated when I left the Bay Area for New York back in 2005. I don’t think that the gangsta rap coloring book should be a part of my movie, but I was pleased to see it once again. Coloring, like many things, is a skill I no longer possess. Read More>


We got back from Tahoe on Thursday night, and I was so happy to see my normal, wonderful wheelchair with all of its capabilities. The elevated footrest! The reclining feature! The headrest!

Wow, you know times have changed when this is the stuff that you find exciting.

On Friday, the van was still not in our possession. I had not heard from Mobility Works with any sort of status update, so I called them. The man who answered didn’t have a lot of information for me, but he did know the part they needed had not yet arrived. It had been five days.

When I received a call back several hours later, David, who runs the service department, told me that he had sent someone on his staff up to Sacramento to pick up the part, but he wouldn’t be back until that night. I’ve always found David to be responsive and helpful. He told me that he would have a rental van dropped off at our house, so that we could use it for the weekend. This was great news.

On Saturday afternoon, we got into the rental van (“It’s red!” Scarlet exclaimed excitedly), and headed out for basketball game number two. I rolled into the van and Rob hooked the wheelchair down. When he went to put my seatbelt on, we realized they’d given us the wrong one. There was no way to fasten me safely into the van. But at that point, I just didn’t care. I wanted to get to the game.

I called David on his cell phone, apologizing for bothering him on a Saturday, but explaining that it would be safer for me to ride around wearing a seatbelt, so that I didn’t feel quite as much like I was nestled in a slingshot, waiting to be deployed into freeway traffic. David agreed that this seemed like a good idea, and sent someone out with the correct seatbelt.

But we had to get to the game right then, so there I was, sitting directly in the center of the car and aimed at the windshield, a very bony ballistics missile in Uggs. Rob tried to take the flattest route, which was not the shortest route, but we made it in time, and I was able to watch Scarlett play. Kindergartners playing basketball turned out to be pretty much everything I had imagined. Some of them were just twirling in circles on the court. Scarlett had one hand in her mouth for most of the game. But they all seemed to really enjoy it, and I was just glad to be there.

I’m not sure when we’ll get our van back, but I want to thank everyone who sent and posted words of support, and especially those of you who reached out to Mobility Works yourselves to tell them my story. Their Director of Customer Service called while we were in Tahoe to check on everything, and he did seem to take everything more seriously once they heard that I was flinging names like Gargamel around. You just don’t want to be associated with that guy.

In the grand scheme of everything, this experience is not a big deal. I know that, but I still managed to let it get to me in a pretty major way, and it affected our trip a lot. Now that we’re back and I’m much more comfortable, I’m better able to focus on the positive.

Scarlett is becoming the kind of skier I never was, and she loves it.

I got my nails painted bright blue at the hotel.

Right now, there’s a red Toyota in our driveway with enough seatbelts for everyone.

And for some reason, which is not totally clear to me, Otto is decked out in a multicolored ensemble that makes him look like the Chiquita banana lady.

We’re okay.

Dear Mobility Van

Dear Mobility Van,

You are the bane of my existence, the mean girls to my Lindsay Lohan character, the Gargamel to my Smurfs. What I’m getting at here is that there’d be no show without you, but wow do you suck.

To be fair, it’s not just you. It’s the entire company we bought you from: Mobility Works. They have mastered neither customer service nor maintenance, and they appear to be confused by social media.

Your door has been broken for many months now, but Mobility Works claims that only half of the door is covered under their warranty, and the rest is Honda’s problem. So, as though following some weird suggestion by a modern day King Solomon of car parts, they fixed only the bottom of your door. We called Honda to see about getting the top part fixed. You know, so the door would work. Honda said they would need the car for at least 2 to 3 days to fix the problem. Mobility van, as much as I dislike you, I do recognize that I can’t spend 2 to 3 days without you. So the door continues to need a manual push. But isn’t it great that the bottom part is fixed?? Read More>