Tag Archives: nana


An update on #whatwouldyougive:

$115,556 raised
60 fundraisers
1208 donors

You can see pictures here at our Instagram account, and it’s not late to donate or to join the team!


I think I should take a shower. Actually, I know I should take a shower. I haven’t showered since Monday,  and there’s really no excuse for it, except for the fact that I haven’t had any time. And so my hair is dirty, and it itches, which is particularly frustrating for someone whose hands can’t reach their head to scratch. I have solved the problem by rubbing the back of my head against my loaner wheelchair — because my own wheelchair is back in maintenance — and this sort of works until I become disgusted by the fact that I am rubbing my head against a loaner wheelchair and I have no idea who was sitting in it before me.

I am not disgusted enough to stop using the chair to scratch my head. Read More>

Life and the Living

I know that everyone dies. I’ve known this for as long as I can remember, since I was a child and I had nightmares of losing my grandmother, a woman who will turn 90 in August and remains sharp and active, a fact for which I am grateful.

It’s not that I want to fight death and aging, the way the characters did in Gary Shteyngart’s great Super Sad True Love Story. People are born, and people must die. And in between is the living, with all of the happiness and suffering it entails.

Sometimes I wonder who I think I am to ask people to rally around a cause just because it affects me and my family. Everyone has their issues. And in many ways in my life, I’ve been far luckier than most. Still, I want more time. And I want more quality time, not time spent feeling my body get weaker and my abilities abandoning me like sailors leaping from a shipwreck. I have to remind myself that I’m only 37, and that this is not old, despite the way my body looks and feels. That it’s OK to wish for more time. Read More>