Sometimes I can’t believe that I ever worried about ANYTHING before ALS. I feel like if I could have my health and my life back the way it used to be, I would just walk around in a state of blissful gratitude all the time, totally irritating the hell out of other people.

But if it sounds like I’m suggesting that everyone who has it better than me should be happy and appreciative all the time, I’m not. That’s obviously nonsense. After all, by that logic, I should also be happy all the time, because the world contains many people whose lives are harder than mine.

These are the things I think about as I struggle to make sense of my disease and what it’s done to my life and the lives of those closest to me. I used to be ABLE. I took care of myself and my family, I cooked, ran, drove, stood on my head in yoga class (sort of. Whatever. That part is not important.) Now I need help to make a simple meal, and getting in and out of bed is a serious physical challenge. When my husband travels for work, I am overwhelmed by logistics. Who, when, what if? Read More>