Monthly Archives: February 2015

Speed4Rebecca

This will sound crazy, but I was looking forward to writing this post. Yes, I’m introducing a new Face of ALS, and that sucks. It’s always hard to do, and every single time, I wish I knew these people for a reason other than our ALS connection.

But this woman you’re about to meet is pretty amazing. Rebecca Hayden was diagnosed with ALS in 2012. At this point in her progression, she types with her eyes and requires assistance with nearly everything, and yet, she is often able to keep things light and see the comedy in her circumstances.

If you don’t have ALS or aren’t as progressed as Rebecca, her posts might be a little shocking. With any serious illness, there are hard moments and there are tears, but it’s important to remember that even with all the changes and challenges, this is still someone’s life. And there is always joy to be found. Rebecca is really good at finding it, with an incredible support team of friends and family to help her. “We laugh a lot,” she wrote to me. Read More>

A Night Out

The ALS Association invited me and Rob to a dinner on Friday night. They had a research summit in San Francisco last week, so we were prepared to dine with scientists, doctors, and researchers, many of the great minds hard at work on the problem that is ALS.

Rob and I don’t go out a ton. We tried to do date night for a while, but our idea of a truly relaxing night is sitting on the couch, drinking wine and watching Breaking Bad. I never wear makeup to sit on the couch and watch Breaking Bad.

Putting on makeup is an interesting challenge these days. I can still do it alone, but it’s shaky. I usually end up with mascara in several places that don’t involve my eyelashes, and I keep a pack of baby wipes in my bathroom to correct all of my mistakes. I don’t think the average person would know that upon looking at my face afterwards, and I’m content to keep doing it solo for now. It’s become almost meditative, more artful than it ever was for me. Slowly, slowly painting. Taking breaks for cramping fingers. Putting on the face of someone who wants to project strength, health, and the illusion of sleep-filled nights. Read More>