It’s day three of #whatwouldyougive, and thoughts have been coming in from the participants.

“I notice how powerless I feel trying to parent my three kids without the use of my voice.”

“This is more difficult than I imagined.”

“I’ve been silent since I got up 4 hours ago. The true test is when we collect the kids from camp and head to lunch.”

“It’s only 2pm and already I feel humbled.”

“Even a few short hours without the use of my right arm and I cannot fathom what it’s like to live with ALS.”

“Crazy thunderstorms woke the children up six times last night (yes really) and while I admit that the first few times I sort of delighted in reminding my husband he had to get up and get them back into their beds, by the fourth time I just wanted to get up myself. It was so frustrating not to be able to do my part.”

“Bittersweet waking up with full use of my arms and hands today. Couldn’t help but think of all the ALS patients that would give anything to wake up, as if from a dream, with full use of their arms, their hands, their legs, their voice.”

Such understandable and honest reactions. I’m so grateful to this team for making themselves uncomfortable, even for a short amount of time, to help make the point that no one should have to live with ALS. Read More>