Category Archives: Life

On and Off…and On Again

Rob and Scarlett and I watched the first Harry Potter movie this weekend. I didn’t realize that it was over 2 1/2 hours long, so it was by far the longest movie she’s ever seen. I also wasn’t sure if maybe she was too young for it, because I don’t think that your average five-year-old is out there watching Harry Potter. Three-headed drooling monster dogs and a scary snakelike wizard whose evil face is coming out of the back of someone else’s head…it’s quite a step up from The Octonauts and Frozen.

But it’s an example of something I occasionally find myself doing, which is introducing her to a book, a movie, or a concept a little early just so that I can make sure I get to share it with her. We read Charlottes Web when she was four, even though I thought that might be a little bit early to deal with the themes and storyline. I think her mind probably strayed a little during the book, but ultimately she declared that she loved it, and she was especially fascinated when I started crying at the end. She brought Charlotte’s Web home from the school library this week. She wants to read it again.

Likewise, she really loved Harry Potter and didn’t seem at all afraid, and I think it helped that we had listened to the audiobook first, so that she knew the story and what to expect. When the hideous troll lumbered into the girls bathroom, Scarlett burst out laughing. Read More>

Picture This

I’ve been going through old pictures recently. Not the kind you print, because it’s been a long time since I’ve done that, but the ones on my computer that I haven’t seen in ages. Photos of ski trips, and hikes through the Costa Rican rainforest. Traveling with Rob on our first trip to London, when I met his family. A yoga trip in Mexico. Martha’s Vineyard right after we got engaged. Our wedding in Central Park. Our honeymoon in Italy.

I remember when I first saw most of those pictures, I thought I didn’t look so great. I picked apart my features, and judged myself in an unflattering light almost every time, but now I’m not sure why. The person I see in those photos is so fast and so active and so happy that I can’t really imagine ever thinking negatively of her. Maybe only time softens our opinions of ourselves.

Rob, Scarlett, Otto and I took holiday card photos in December with a great photographer, and I was still pretty critical of the way I looked. It’s easy to find fault with my appearance now, but I try not to do it. I have a five-year-old listening, and besides, I do like the way I look in some ways. My nails are stronger than ever, because they don’t do dishes or cook, and I certainly can’t get them in my mouth to bite them, no matter how anxious I might be feeling at any given moment. When my hair is clean (once or twice a week) it looks decent. I wear a dress every day, so I can’t be accused of schlubbing around. (But don’t inquire about the undergarments.) Read More>

Updates

We got back from Tahoe on Thursday night, and I was so happy to see my normal, wonderful wheelchair with all of its capabilities. The elevated footrest! The reclining feature! The headrest!

Wow, you know times have changed when this is the stuff that you find exciting.

On Friday, the van was still not in our possession. I had not heard from Mobility Works with any sort of status update, so I called them. The man who answered didn’t have a lot of information for me, but he did know the part they needed had not yet arrived. It had been five days.

When I received a call back several hours later, David, who runs the service department, told me that he had sent someone on his staff up to Sacramento to pick up the part, but he wouldn’t be back until that night. I’ve always found David to be responsive and helpful. He told me that he would have a rental van dropped off at our house, so that we could use it for the weekend. This was great news.

On Saturday afternoon, we got into the rental van (“It’s red!” Scarlet exclaimed excitedly), and headed out for basketball game number two. I rolled into the van and Rob hooked the wheelchair down. When he went to put my seatbelt on, we realized they’d given us the wrong one. There was no way to fasten me safely into the van. But at that point, I just didn’t care. I wanted to get to the game.

I called David on his cell phone, apologizing for bothering him on a Saturday, but explaining that it would be safer for me to ride around wearing a seatbelt, so that I didn’t feel quite as much like I was nestled in a slingshot, waiting to be deployed into freeway traffic. David agreed that this seemed like a good idea, and sent someone out with the correct seatbelt.

But we had to get to the game right then, so there I was, sitting directly in the center of the car and aimed at the windshield, a very bony ballistics missile in Uggs. Rob tried to take the flattest route, which was not the shortest route, but we made it in time, and I was able to watch Scarlett play. Kindergartners playing basketball turned out to be pretty much everything I had imagined. Some of them were just twirling in circles on the court. Scarlett had one hand in her mouth for most of the game. But they all seemed to really enjoy it, and I was just glad to be there.

I’m not sure when we’ll get our van back, but I want to thank everyone who sent and posted words of support, and especially those of you who reached out to Mobility Works yourselves to tell them my story. Their Director of Customer Service called while we were in Tahoe to check on everything, and he did seem to take everything more seriously once they heard that I was flinging names like Gargamel around. You just don’t want to be associated with that guy.

In the grand scheme of everything, this experience is not a big deal. I know that, but I still managed to let it get to me in a pretty major way, and it affected our trip a lot. Now that we’re back and I’m much more comfortable, I’m better able to focus on the positive.

Scarlett is becoming the kind of skier I never was, and she loves it.

I got my nails painted bright blue at the hotel.

Right now, there’s a red Toyota in our driveway with enough seatbelts for everyone.

And for some reason, which is not totally clear to me, Otto is decked out in a multicolored ensemble that makes him look like the Chiquita banana lady.

We’re okay.