Today’s blog post is up at the Muscular Dystrophy Association site. You can read it here.
Category Archives: Relationships
How Quickly Things Change
Rob and Scarlett got me a new phone for Mother’s Day. It worked for a few hours, and then just kept turning off. Although I will need to get it fixed or replaced eventually, I found that I was in no hurry yesterday to do so. When I have a phone around, I’m always on it, and I’m sure that most people reading this are the same way. I’m checking my to-do list, scrolling through Facebook, reading email, sending Bitmojis, doing crossword puzzles, even paging through books. Occasionally, I use it to make phone calls. But yesterday, I couldn’t do any of that and it was sort of awesome.
We met my sister and her family at a playground, and I got to hold Fiona in my lap almost the entire time. There was no room for a phone. Then I hung out with Scarlett while she cleaned the garage, because that is the kind of child labor I can get behind. I read a magazine, and threatened her with various consequences when she started whining that the job was too hard. Ha ha, Mother’s Day wins. Again, I was happy to be phoneless, so that I could really focus on my task of drill sergeanting. Read More>
Jazz Fest, but not really
I am overflowing with words and nothing can keep up with me. Definitely not my own mouth, not my dictation device, not my energy level, that last whittled down by a late-night arrival into San Francisco after a trip to New Orleans that feels almost like it was a dream.
It’s May. It’s ALS awareness month. That’s worth discussing for an entire blog post. But not today. Rob just got home from work. He said there are two huge boxes outside, and then brought them in. Wedges for my bed, sent by Team Gleason when I was clearly envious of Steve’s. A kind gift on top of a weekend of kindness.
For anyone who’s not familiar with Team Gleason or Steve Gleason, the quick story is that Steve was a safety with the New Orleans Saints, and was diagnosed with ALS in 2011. Since that time, he and his organization have worked to make life easier for other people with ALS. Steve focuses on technology, and on being proactive in the face of the disease. Through the Adventures side of his team, people with ALS have been invited to experience the kinds of things they might have assumed were beyond them post-diagnosis.
That’s where we come in Read More>