Still Life

There is this man sitting on a camel colored leather couch in front of a giant flatscreen TV that hangs on a white wall. He has a computer in his lap and a cell phone next to him and an iPad sits on the round wooden coffee table. It looks as if someone has been carving into the coffee table, and there is really only one potential suspect for this, but another possibility is that this is the way the table has always looked.

Sometimes we look around a familiar room or even a neighborhood and see things we swear we’ve never seen before. Entire houses seem to have appeared overnight. We search for children who exist only in picture frames. Children who turned into something different and moved away.

But back to the man. He has information coming at him from at least six different directions. He looks down at the woven rug beneath his feet and remembers trying to return it because it was just a little more pink than he had anticipated. But then he got used to it, and the sun from the tall window faded all the colors anyway. The rug is worn down, fraying at the edges, and this is a little bit like the way the man feels. The hair on his temples has gone gray and he feels frayed at the edges. In fact, he feels like throwing any number of devices at the window or the wall or the TV.

He is doing everything he can to stay afloat, but one can only be a superhero for so long. The savings accounts look more like piggy banks full of enough coins to get you an ice cream cone, but not a life. The man runs his hands through his hair until it sticks straight up. Now he is frayed and frazzled, his appearance an apt metaphor for his inner turmoil. The man hates phrases like “inner turmoil” because to him they sound like psychobabble and do nothing to help the actual situation at hand. Which, at the moment, is the numbers that he is seeing on his screen.

There is no one else home. No one else lives there, though friends stop by from time to time to see if he needs help. Caregivers come to assist him with the body parts that no longer work. For a time, he could get around the house pretty easily, but then his legs gave out and he laid on the floor for an entire night wondering if there was any way he could reach the morphine and just drink all of it. He was picturing himself as a soldier, specifically an ally in the second world war, gunned down and dying slowly on foreign soil. But he could see the rug from where he had landed and it ruined the fantasy. Because being a dying soldier in the 1940s is the fantasy when the reality is being a man alone with a pink rug and a prognosis that no one would wish for. He is no hero, although he once thought he had it in him to be something special.

Maybe he could sell the rug. Maybe he could sell the house, but then where would he go? He’s too young for this. He refills his glass of wine; he has surrounded himself with everything he needs while the caregiver is on a break.

He thinks about his great-grandmother in a nursing home when he was just a kid. The nursing home terrified him. Old people terrified him. He wonders if that’s why he will never get to become one.

He looks out the window at the house next door, peeling green paint and a boarded up window that he swears he has never seen before.

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7 thoughts on “Still Life

  1. Annmarie

    Sarah, I don’t want to feel sad and heartbroken tonight…but the space that you are in, where no one lives, makes me feel bereft. You have fought bravely, you have inspired countless people, more than you can ever know. Savor that ice cream cone as you have taught us to do….and know that you have made the world better.

  2. Beth Carey

    Wow Sarah, what a story. You continue to put out truly incredible writing while giving us all so much to feel and think about. Wow is best word I can come up with for the moment.
    Hugging you from afar.
    Love,
    Beth

  3. Lorraine Kushynski

    Such a honest beautiful story…. you fight a brave fight Sarah, and you have no idea how much impact you make on so many! Thank you

  4. Marty Agresta

    Hi Sarah, I first began reading your blog because I enjoyed your honesty and your ability to find some humor in relating what ALS does to a once “normal” life. As time has passed, it is obvious how difficult getting through a day has become. I share your frustration as I am 10 years into this crappy journey. I’m so sorry that you are such a young mother and wife trying to fill those roles while just trying to eat, scratch an itch, ask for help to do the most personal activities, etc. without feeling like an intrusion in everyone else’s lives. We put on a happy face because nobody wants to be around a Debby Downer all the time and those relationships are important to our well being. So where do we find that safe place/person who can listen and understand how hard this life is most of the time? Not sure anyone can ever understand unless they “walk in these shoes”. And yet I try to never diminish the everyday struggles that most people deal with.
    Just rambling a bit – and to say I feel your pain. Sending you peaceful thoughts.

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