Tag Archives: ALS

Back to the Clinic

I had my regular ALS clinic appointment last week. I go every three months, which is recommended based on my level of progression. It’s not an uplifting place, but I’m learning to prepare myself and to control my reactions, regardless of what the clinicians might tell me. Having Rob there is crucial. The one time he couldn’t make it is the one time I ended up sobbing, and it took me a week to get back to normal.

Here’s how the appointment goes. I start out by getting weighed. That means wheeling my chair onto the scale to get the weight of both of us. Then I hop out (just kidding! I get out slowly, with help) and they weigh the chair alone. This brings to mind a new mom weighing a baby by holding it in her arms, and then weighing herself without it, and that thought leads to another thought and then another and I find myself wondering what I would be doing right then if I didn’t have ALS.

Then the nurse comes in and asks a series of questions called The Functional Rating Scale to determine how far I’ve progressed since I was last there. Yes, that’s right. They’re asking me. Read More>

|Categories: Diagnosis, Doctors, Drugs, Life, Progression, Research | Tags: , , , , , | Permalink

My Unique Sound

Yesterday, I set out to conquer the world of voice banking. For those who are uninitiated to this fairly new and exciting technology, it’s software for people whose ability to speak might become compromised. Many—though not all—ALS patients will face deterioration or outright loss of speech in the course of their illness.

An article on the Muscular Dystrophy Association website says:

Not everyone with ALS loses their voice, but it’s a common symptom, especially in bulbar-onset ALS. While there’s no easy way to prepare for this prospect, “voice banking” is a viable option for preserving your unique sound and the identity it represents.

Ideally, you start early, before your voice is affected, which is where I am now. Read More>

|Categories: Diagnosis, Life, Progression, Research | Tags: , , , , | Permalink

That Time I Was Psychic

I was 26 and working for a book publishing company just outside of San Francisco. My job in marketing meant that I met with advertisers occasionally. Unfortunately for the ad reps, we had such small budgets for each book that we never really spent money, except maybe once or twice a year in the largest industry magazines. One of those magazines had just hired a new publisher, and he was doing the rounds of all the publishing houses in New York and California, meeting the important people who made decisions. And also meeting me.

When Rob walked into my office for the first time, he was wearing a suit and tie, something that no one wore there ever. Bay Area publishing? We were lucky if people had real shoes on. Read More>

|Categories: Age, Life, Relationships | Tags: , , , , | Permalink