Tag Archives: fundraising

Weekend of Awesome

Fall is a crazy time. Maybe that’s true for everyone, but for some reason this fall seems more chaotic than usual in our house. Or, if not exactly chaotic, then just busy. This past weekend started with the Friday publication of an essay I wrote for CNN. I was so excited, and spent the morning toggling back and forth between different sites, trying to determine if anyone was reading it. They were! At which point I had to question my decision to send CNN that one picture of myself in the ICU with very, very dirty hair.

I then spent the afternoon at a trampoline park with Scarlett and one of her friends. When they got bored of bouncing, they went outside into a grassy field, dumped dirt on each other, and then found some puddles to splash around in. I put my mud monster into the car about an hour later, and the evening was spent trying to find a child beneath the dank exterior of what looked more like one of those dogs with dreadlocks.

So when I say we’re “busy”, I don’t always mean busy in a cool way. Read More>

An Underfunded Disease

“ALS is not an incurable disease.  It is an underfunded disease.”  – Stan Appel, M.D.

Last year, my husband Rob gathered a huge team of people to participate in the Napa Valley Ride to Defeat ALS. The event was held in September in Yountville, California on a gorgeous day. And I was nervous. It’s sometimes hard for me to prepare myself to be around other people with ALS, people who are further progressed than I am. I was afraid that what was meant to be a day of fun and accomplishment was instead going to be wildly depressing.

I am happy to report that I was wrong. Read More>