Tag Archives: gleason movie

Looking Forward

Rob and I watched the movie Gleason last week. He was out of town when I attended the San Francisco screening, so this was his first time seeing it. Now that it’s on iTunes and Amazon, I highly recommend that everyone check it out if you haven’t seen it already.

Seeing the movie for the second time was eye-opening for me in new ways. The first time I watched it, I was very focused on the relationship between Steve Gleason and his wife Michel as they navigated ALS. It seemed like they came to the disease from such a place of strength and connection, yet it was and is an incredible challenge to maintain a relationship. Rob and I know all about that, and judging by the conversations I have with other ALS patients, we are not the only ones. So this time, I set the relationship stuff aside, and I just watched Steve.

I watched him as a strong professional football player, muscled and aggressive and fast. I watched him as a groom, and as a traveler. I watched as he fell while attempting to run across the rug of a church. Read More>

The Human Condition

I’ve been trying to write a blog post for the past week, but all that comes out are the ramblings of a crazy person. It’s been so hard to collect my thoughts, and I’m not sure I’ve done it here successfully at all.

Case in point, I’d like to start with a completely random digression. I’ve known a few crazy people in my life. The woman in my college town who yelled at canned goods in a bus stop alcove. The guy in the same town who used to stand outside the bagel store in his Delta Gamma sweatshirt (according to him, he was a member of the sorority), hassling frat guys and flirting with girls. When I went in to grab a cup of coffee and a bagel, he would sit with me and talk about his upcoming wedding, which was probably imaginary. But it was a welcome break from studying. Everyone called him Scanner Dan, I guess because he used to count things. Dan was short, bearded and far older than the average person that I encountered on State Street. He would sit across from me at a round table, his grubby fingers and greasy hair setting him well apart from the rest of us. Still, he was a part of the college experience. The word at UW Madison was that there was a psychiatric hospital across the lake and that when people got out and went to halfway houses, some of them just started hanging out on campus. It makes sense, I suppose, and is probably something I could confirm with a quick Internet search. But there are crazy people everywhere. Anyway, I don’t think I’m one of them, I just think my latest unposted blog efforts have seemed a little… unhinged. Read More>