Hi. By the way, Christmas is in like a week. Every time I think I’m ready for it, I realize there are nine new things that need to happen before next Friday. It’s a funny time of year, definitely one of the happiest for me, because I have such fond memories of Christmas growing up, and because it’s so much fun to experience the holiday through Scarlett’s eyes.

I love sending holiday cards, love when the tree is decorated, love when I can find the perfect gift for someone. But all of that is certainly made more complicated by ALS, and the weakness in my hands that is really getting in the way of this year’s progress.

So far I’ve had lots of help: a lovely and talented friend who volunteered to take our family photos, people to enter addresses into my computer when my hands got tired, Rob and Scarlett who decorated the tree so beautifully, the Internet and its unlimited gift possibilities. Also wine. And straws. Read More>