Monthly Archives: July 2014

Vain Girl

There exists a manual entitled The Vain Girl’s Guide to ALS. It was written by Carla Zilbersmith, a comedian, actor and singer who was diagnosed in 2007. That year, she announced to an audience of people, “For those of you who don’t know, I was diagnosed with Lou Gehrig’s disease a couple of weeks ago…. I hate baseball. I’d really much rather have been diagnosed with a basketball disease. Maybe Wilt Chamberlain disease. That’s the one where you have sex 20,000 times and then you die.”

Carla is unfortunately no longer alive, but her manual lives on to encourage other women like myself not to become frumpy bag ladies just because our bodies are in early retirement. Read More>

Asking

Last week, Scarlett and I were out for lunch with some other family members, when she caught sight of a man who had prosthetic arms. Using the hooks on the ends, he deftly pulled a credit card out of his wallet and paid for his food. Scarlett stared. “Why does he have those?” she asked quietly.

I’ve faced a lot of curious looks since I got my walker, and now my wheelchair. Children will ask. Adults mostly do not. My least favorite times have been when I can hear a child ask their parent about me, and the parent shushes them or calls them nosy.

So my response to Scarlett was, “Ask him.” She did, and he told us that he was born without arms and uses his prosthetics to do everything he needs to do. Then he and I got into a discussion about asking. We both said we liked when kids asked. They’re curious, and we’re different. It’s ok. Read More>

Adventures at the DMV

I love my disabled parking placard. Of course I wish I didn’t need it, but I’m realistic. It makes my life much easier. Never mind the accessible handicap spots. Did you know you don’t EVER have to pay a meter if you have one of these magical plastic things?

Contain your envy.

But it wasn’t as easy as I thought it would be to obtain my new blue friend, and that is because the DMV was involved.

I assume that nearly everyone reading this has been to the DMV at some point, and I also assume that exactly none of you enjoyed it. This is not a slam on anyone who works at the DMV. It’s just not a very enjoyable place. Read More>