Monthly Archives: September 2014

Things that Matter

Today I had this weird thought that maybe people think my whole life revolves around my ALS. Well, around that and around being a mom with ALS, because those are the things that I talk and write about the most. So I’m going to tell you some other stuff that I’ve been up to, because I don’t really want you to think that I write one line a day on Facebook and then kick back, streaming Scandal off Netflix until it’s time to pick up Scarlett at school. I do not do that. Ahem. I do not do that all of the time.

Once a week, I take an Italian lesson with a woman named Paola. Paola comes over and I make her a cup of coffee and we speak Italian for an hour. And sometimes we eat brownies because the lesson is at 9:30am and that is an outstanding time for chocolate. This means I have homework, so at other times during the week (usually the night before a lesson), I can be found studying Italian. Other times still, I can be found speaking to Scarlett in Italian and she can be found yelling “No Italian!” at me. Read More>

Adjusting…eventually

This weekend, Rob, Scarlett and I went car shopping. Well, to be more specific, we went wheelchair van shopping. Little less sexy, right? There are a few places in the Bay Area that specialize in vans, and we went to one in Burlingame called Mobility Works. On the weekends, they are only open by appointment, which meant we had the whole place to ourselves with a knowledgeable sales guy named Mike.

Mike showed us new and used vans from Toyota, Honda, and Dodge. It works like this: you add a 25K conversion fee to the MSRP of one of these vans. Any add-ons (leather seats, sunroof, navigation, anxiety medication) cost extra. It gets expensive. Used vans can be a good option, provided you can find one that has all of your requirements. For us, the top three are: Read More>