Monthly Archives: May 2016

Staying Aware

Today is the last day of ALS Awareness Month. That doesn’t really matter to me, although I’ve appreciated all of the posts and efforts people have made during the month of May to raise awareness and share their realities of life with ALS.

Tomorrow is June. Am I going to stop raising awareness of ALS and move on to something else? Of course not. This is my thing. After all, what if we only celebrated hotdogs on July 23, which is National Hotdog Day? Would that be fair to hotdogs? The answer is no, it would not. And since we’re asking questions, is hotdog one word? Dictation seems to think so, and I’m too lazy to argue.

May was a good month. I celebrated my seventh Mother’s Day. I survived while Rob and Scarlett went to Arizona. Some of my best friends came to spend a weekend with me. Memorial Day weekend was full of peach picking and pool parties. Otto turned one, and his personality changed not at all. Read More>

|Categories: Cure, Doctors, Drugs, Life | Tags: , , , | Permalink

Driven

I’m excited to be featured today at Driven for Women! Thanks to Mala Reddy for the introduction and Morgan Brasfield for including me among the incredible women she profiles.

|Categories: Faces, Life, Meditation, Parenting, Progression, Relationships | Tags: | Permalink

Tough Talk

Update 5/24 :  I spoke with the mom who is referenced in this story about what happened. She is a friend, and a lovely person, and I don’t fault her for this. Kids say what they say–my own included! My purpose in telling this story wasn’t to demonize anyone, but just to share another ALS experience.

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The little girl was asking me a question, but I couldn’t hear her over the noise of the playground. I leaned around Scarlett’s head and asked the girl–a 6-year-old who lives in our neighborhood–to repeat herself, but it took a few tries before her question was audible. When I could finally understand what she was saying–and she was speaking pretty loudly by that point–what I heard was “Does Scarlett know that you’re going to die soon?”

There are a lot of possible answers to that question, but the first thing that came out of my mouth was “Oh honey, I’m not going to die soon.”

She persisted. “My mom says that you’re going to die soon.”

“Well,” I said firmly. “I’m not.” And then I must have said something else, but I absolutely don’t know what it was, and suddenly we were wheeling off to another section of the park. Read More>

|Categories: Life, Parenting | Tags: , | Permalink