Category Archives: Venting

Vignettes

An update on #whatwouldyougive:

$115,556 raised
60 fundraisers
1208 donors

You can see pictures here at our Instagram account, and it’s not late to donate or to join the team!

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I think I should take a shower. Actually, I know I should take a shower. I haven’t showered since Monday,  and there’s really no excuse for it, except for the fact that I haven’t had any time. And so my hair is dirty, and it itches, which is particularly frustrating for someone whose hands can’t reach their head to scratch. I have solved the problem by rubbing the back of my head against my loaner wheelchair — because my own wheelchair is back in maintenance — and this sort of works until I become disgusted by the fact that I am rubbing my head against a loaner wheelchair and I have no idea who was sitting in it before me.

I am not disgusted enough to stop using the chair to scratch my head. Read More>

Where is my mind?

I’m not feeling well today. I want to write an entire blog using only Emoji’s: a raincloud, a cough machine, a devilish dog, a child sneaking candy, a burgundy nurse with arm muscles like Popeye.

It’s just a cold, but another cold is not what I needed right now. Yesterday was the last day of the official #WhatWouldYouGive challenges, but it looks like the campaign will continue as more team members give up abilities into August. We might extend the whole thing even longer, because why not? We haven’t cured ALS yet, despite all the talk you hear about breakthroughs.

Breakthrough is a funny word. And every time I read an article using that word it reminds me of when I worked in book publishing and we called every book groundbreaking. They weren’t. But you can say whatever you want when you’re trying to get people’s money and attention. Read More>

The Unclean Machine

Scarlett woke up this morning and got dressed in Parmesan cheese. That probably looks like a dictation mistake, but it’s true. She ate her breakfast of leftover pizza, wearing nothing but her underwear, and by the time she crawled onto my lap to listen to Harry Potter and the Order of the Phoenix, she was covered in tiny flakes like pungent snow, and so was I. And really, what could be a more auspicious start to the day than being sprinkled with secondhand dairy dandruff? When Scarlett flounced off to brush her hair and change her clothes, I just sat there with my winnings.

When she was younger, my daughter used to hand me all of her garbage to take care of. And as far back as I can remember, I would direct her to the nearest garbage can instead. She was three years old when I got a wheelchair, and when she tried to give me her garbage then, I would say “Mommy is not a garbage can”, and shoo her away. At six years old, she’s good at cleaning up after herself, and yet, I feel like I’m always holding something that is hers, covered in something she was eating, or in sudden possession of a lap full of sticks and flower petals because she “needed them for later!” Read More>