All the Feelings
One day last week, Scarlett sidled up next to me and said, “Otto is being a real D – N – E – R.”
“What does that spell?” I asked her.
“Jerk,” she whispered.
Otto, who was calmly lying on his dog bed in the corner of the living room, seemed unfazed by this random attack on his character. I just laughed to myself. She’s working so hard on her spelling, and in pure Scarlett fashion, concentrates more on certain types of words than others. You can see further evidence of this at her Twitter account.
We laugh a lot in our house, mostly at the things that Scarlett says, although in our finer moments, Rob and I can even laugh at our situation. After all, what else can you do?
Oh wait, I know! I totally know this one.
You can cry.
I cry. I’m just sharing that in case anyone thinks that I am strong and stoic and unemotional and brave all the time. Read More>
Happy Holidays
Hi. By the way, Christmas is in like a week. Every time I think I’m ready for it, I realize there are nine new things that need to happen before next Friday. It’s a funny time of year, definitely one of the happiest for me, because I have such fond memories of Christmas growing up, and because it’s so much fun to experience the holiday through Scarlett’s eyes.
I love sending holiday cards, love when the tree is decorated, love when I can find the perfect gift for someone. But all of that is certainly made more complicated by ALS, and the weakness in my hands that is really getting in the way of this year’s progress.
So far I’ve had lots of help: a lovely and talented friend who volunteered to take our family photos, people to enter addresses into my computer when my hands got tired, Rob and Scarlett who decorated the tree so beautifully, the Internet and its unlimited gift possibilities. Also wine. And straws. Read More>