Tag Archives: whatwouldyougive

Social Influence

Last Friday, Scarlett and I went to visit Rob’s office. He took a new job in April, at a start-up called Linqia in San Francisco’s Union Square neighborhood. We hadn’t seen his workspace before, and we were excited to meet his coworkers and see where he spends his days.

The main reason we were there was that Rob was rolling out the #WhatWouldYouGive campaign and asking his company to get involved. We gathered in the conference room, where Rob talked to a large group about the genesis of our fundraiser, and how he hoped to impact awareness through a “day of silence” at Linqia.

While he spoke, Scarlett held court in the corner, crawled around under the conference room table, pulled apart the protective covering on a few chairs, and ate an alarming amount of  bread and cookies. Read More>

|Categories: Cure, Life, Relationships, Research | Tags: , , | Permalink

Vignettes

An update on #whatwouldyougive:

$115,556 raised
60 fundraisers
1208 donors

You can see pictures here at our Instagram account, and it’s not late to donate or to join the team!

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I think I should take a shower. Actually, I know I should take a shower. I haven’t showered since Monday,  and there’s really no excuse for it, except for the fact that I haven’t had any time. And so my hair is dirty, and it itches, which is particularly frustrating for someone whose hands can’t reach their head to scratch. I have solved the problem by rubbing the back of my head against my loaner wheelchair — because my own wheelchair is back in maintenance — and this sort of works until I become disgusted by the fact that I am rubbing my head against a loaner wheelchair and I have no idea who was sitting in it before me.

I am not disgusted enough to stop using the chair to scratch my head. Read More>

|Categories: Age, Life, Relationships, Venting | Tags: , , | Permalink

Where is my mind?

I’m not feeling well today. I want to write an entire blog using only Emoji’s: a raincloud, a cough machine, a devilish dog, a child sneaking candy, a burgundy nurse with arm muscles like Popeye.

It’s just a cold, but another cold is not what I needed right now. Yesterday was the last day of the official #WhatWouldYouGive challenges, but it looks like the campaign will continue as more team members give up abilities into August. We might extend the whole thing even longer, because why not? We haven’t cured ALS yet, despite all the talk you hear about breakthroughs.

Breakthrough is a funny word. And every time I read an article using that word it reminds me of when I worked in book publishing and we called every book groundbreaking. They weren’t. But you can say whatever you want when you’re trying to get people’s money and attention. Read More>

|Categories: Cure, Drugs, Life, Parenting, Relationships, Research, Venting | Tags: , , , , | Permalink