Category Archives: Age

Her Third Grandma

I have now been asked—two times—if I am Scarlett’s grandmother. This is not a joke. Two entire people have looked at me and seen, I guess (?), only a wheelchair. The first woman was so surprised it was comical. We’d been talking for nearly ten minutes in a park when Scarlett wandered over.

“Your granddaughter?” she asked.

“My daughter,” I said.

“Oh!” she blurted. “I thought you were my age! I’m 67.”

“I’m 36,” I told her. I could tell she felt bad, but I figured it was a one-time mistake, a trick of the light, my choice of oversized sunglasses, my shapeless maxi dress. I wasn’t insulted.

Then I took Scarlett for ice cream on Saturday, just the two of us. We rolled the mile from our house to a little sweet shop in our nearest downtown area. It’s been open since 1931, and retains the charm (and maybe a few actual bags of candy) of that time. The only thing that gives it away is the collection of Teenage Mutant Ninja Turtles and Hello Kitty Pez dispensers in the display window.

Scarlett likes to try to see if she can get candy out of the machines that sit outside the doorway, without putting any money in. “Let’s just see if I get lucky,” she’ll say, as if it would be the thrill of a lifetime to wind up with a free handful of rock hard sugar shaped like fruit. Read More>

Blogger Girl

I’ve been blogging since 2007. That’s the year I started Deepish Thoughts, a site to keep friends and family up to date on my life, as well as on the bizarre and hilarious things Rob said. Which were many. When Scarlett was born in 2010, I shifted my attention to The Scarlett Letters, where I posted pictures and wrote to her about her life. And now, obviously, I’ve moved here to record my thoughts and experiences living with ALS.

I can’t keep up with two blogs, let alone three, so each time a new blog is introduced, an old one gets ignored. Or, let’s say it gets its wings, because that just sounds nicer. The blogs mark everything significant that has happened in my life over the course of more than seven years. Engagement, marriage, cross-country move, baby. The death of my beloved Papa, my dear brother-in-law, and several pets. It’s just a life, like any other. But I’m glad, now more than ever, that I chronicled it.

My story, with its unexpected trajectory, might make some people sad. But not me. I look back at those old posts and sometimes I just laugh. As I read about the traveling I’ve done, I find that I’m not mourning the loss of my abilities. Instead, I’m feeling insanely lucky to have seen so many different places. It appears that my past—at least the past I’ve chosen to document, and this is an important distinction—makes me happy. Though I’m not proud of all of it. Read More>

Weekend in Review

“I urge you to please notice when you are happy, and exclaim or murmur or think at some point, ‘If this isn’t nice, I don’t know what is.’” —Kurt Vonnegut, A Man Without a Country

This weekend, I forgot I had ALS. Not the whole time, of course, but for entire delicious hours. I don’t know exactly how it happened, and I don’t plan to analyze it too closely.

Friday night was our 6th wedding anniversary. To some, that’s the “iron” anniversary, but Rob and I know it as the “one where you celebrate with your brother-in-law, who scored Beck tickets and invited you because his own wife was out of town.” The three of us went out to dinner and to see the show at a new SF venue, The Masonic. Brand new places are awesome, because they all conform to accessibility laws and basic common sense. Our general admission tickets led us to a raised platform with good views, and, most importantly, safety from the sweaty, excitable guy below who kept high-fiving a thin-lipped usher, even though she clearly just wanted to be at home with her cats.

It was an older crowd at the show, suggesting to us that Beck is perhaps not as cool as he once was. Which is fine, because I am totally, totally uncool. And I’m not just saying that so that someone tells me that I am, in fact, cool. I’m not and it’s fine. I think most of the trouble I’ve gotten into in my life stems from trying to be cooler than I am. Perhaps we’ll explore this in a future post. Read More>