Category Archives: Drugs

#WhatWouldYouGive 2016

Imagine two newborn babies wrestling while having temper tantrums, and that’s the sound this bird in the tree above me is making right now. Seriously, I’ve never heard anything like it, and I so wish I could somehow attach an audio file to this blog.

It’s a gorgeous day in San Francisco, and I’ve spent it in a state of semi-consciousness on the back deck. It makes me think of summer days in Chicago, when my friends and I would rollerblade to the beach and slather ourselves in Tropical Sun dark tanning oil, so we could marinate for six hours while being entirely unprotected from UV rays. This being San Francisco, I’m wearing a sweater and socks, but it’s comfortable, even with the weird avian nursery scandal going on overhead.

Scarlett is in circus camp this week, and yesterday she practiced juggling and walking on stilts. Obviously, I’ll be living vicariously through her all summer, since the main thing I have to report about my day is the noise of a crow with multiple personalities.

Except of course that’s not true. Read More>

Hands On

I have bright purple nails. They will last for at least three weeks, and probably longer. It’s just regular nail polish, not the gel or no-chip kind that is supposed to withstand the tsunami of running a household. I don’t need that kind anymore. When I used to wear regular nail polish, it would chip within two days, helped along by my fluttering fingers that were always in motion. But now, it lasts forever. I don’t cook, I don’t clean, I don’t bathe my child or wash my own hair. I don’t even have the energy to pick at the polish the way I used to, and so my hands always look nice now, my skin soft, the nails short and square. Thanks, ALS.

Sometimes it’s nice to have other people do things for you. I’ve always liked getting my nails done, as opposed to doing them myself. And I’ve never cut my own hair… Wait, I take that back, I did once cut my own hair in my early 20s by putting it in a ponytail and lopping off the tail part. That was pretty satisfying in an I’m going to regret this later kind of way.

But there’s lots of self care that’s just better to do yourself. Flossing, for example. I know I should consider myself lucky that I have an assistant who is willing to floss my teeth, and I do. But still. Read More>

Staying Aware

Today is the last day of ALS Awareness Month. That doesn’t really matter to me, although I’ve appreciated all of the posts and efforts people have made during the month of May to raise awareness and share their realities of life with ALS.

Tomorrow is June. Am I going to stop raising awareness of ALS and move on to something else? Of course not. This is my thing. After all, what if we only celebrated hotdogs on July 23, which is National Hotdog Day? Would that be fair to hotdogs? The answer is no, it would not. And since we’re asking questions, is hotdog one word? Dictation seems to think so, and I’m too lazy to argue.

May was a good month. I celebrated my seventh Mother’s Day. I survived while Rob and Scarlett went to Arizona. Some of my best friends came to spend a weekend with me. Memorial Day weekend was full of peach picking and pool parties. Otto turned one, and his personality changed not at all. Read More>