Category Archives: Parenting

Getting Warmer?

My favorite parenting book is called Brain Rules for Baby. I think maybe I’ve written about it before; I happen to be pretty obsessed with it. The book is written by a brilliant scientist named John Medina, and I had the pleasure of hearing him speak shortly after Scarlett’s birth.

Among the observations and research that Dr. Medina shared was this (completely heterosexually oriented) idea that if a dad wants to have a happy and successful child, he must treat the mother of that child as though she is a queen. I recall reading this part of the book out loud to Rob before our baby was born, but he didn’t seem all that moved by it, and I have to say I’m not sure he’s ever treated me like royalty. Unless you count his treating me like a royal pain in the ass, in which case yes, he does do that. But not without reason.

Dr. Medina also talks about the most successful method of parenting, which he describes as “warm but demanding.” I like that, and I’veĀ strived striven strove worked to enact it in my raising of Scarlett. But it doesn’t always pan out correctly, because while I can usually remember the demanding part, when she is not listening and is being particularly difficult, I often forget to be warm.

We’re going through a bit of a rough patch lately, although as I write that I realize that it doesn’t take into account all of the good times, all of the sweet times, all of the times that we have a conversation that leaves me slightly in awe of this little person who is growing before my eyes. However, that same little person is desperate to do exactly what she wants when she wants in a way that usually involves the dog and is just incredibly incredibly annoying. I often tell myself in my own head that if I weren’t in a wheelchair, if I didn’t have ALS, that things would be so different. But I know my healthy parent counterparts can get just as frustrated with their own children. Kids, if my own is any indication, can be real jerks.

But ALS adds more to our story. I can ask Scarlett to do something, but I can’t help her with it or show her how I’d like it done. If it goes wrong, I can’t clean it up or fix it. I have to ask someone else to do that. So I get upset, not necessarily with her, but with the fact that I can’t do the things that I believe any mom should be able to do.

I’m not trying to be hard on myself, just honest. I definitely do my coldly demanding parenting in front of other people, and I think that it can be surprising to them. I have very high expectations for my daughter, because I’ve seen her meet them. But I also know that she is still a young kid and that I should be more flexible in certain situations. I know this, but that doesn’t make it any easier when she is flailing her arms around after I’ve asked her to be aware of her body, and a glass of milk goes flying, and I can’t just calmly and quietly help her wipe it up. When I snap at her, I sometimes think it is so the person who does have to clean it up knows that I don’t take what they’re doing for granted. Spilled milk is definitely no big deal. But aren’t we all a little tougher on our kids when we sense that other people are being inconvenienced?

When she was younger, even when things were difficult with her behavior, I handled it better because I knew that I could. That we were in it together, and that I was guiding her. I was being warm, but also teaching her what was expected in our family. And now, what am I teaching her? That we cry when we get frustrated? That we lash out at other people when we are feeling helpless? These are terrible lessons, ones that I’m sure Brain Rules for Baby would not recommend.

On the other hand, being coldly demanding does strike me as something a Queen might do during her reign. Maybe I’ll just go with that, and stop apologizing. Will someone please hand me a scepter? Actually, just stand over there and hold it. We’ll all know it’s mine.

Someday

I canceled all of my appointments for this morning, feeling too tired to deal with the real world and the people who live in it. It’s raining outside and Otto is pacing the floor. I spent an hour reading blog posts that I wrote to Scarlett in 2011 and 2012. They didn’t make me sad, but I did feel nostalgic for a time when she was a ferocious toddler and I was her complete mom. I know, I know. I’m still her complete mom, but that’s not what I mean. I mean the mom who moved, who drove, who carried her across the city, even as I began experiencing symptoms of ALS. I read blogs about her first few days, weeks, and months at preschool. When I knew I had ALS, but I was still so mobile that I saw no need to acknowledge it.

Right now my sister and her family are in New York, and when I facetimed her this morning, she immediately put the phone up to the street sign over her head: 23rd St. and 10th Ave. Where Rob and I used to live. They were going for lunch at our favorite tapas restaurant, a place we frequented when we lived in Chelsea. I miss New York. I miss those early days of Scarlett in San Francisco. Sometimes I wish I could go back for just one day and appreciate the use of my legs, the strength of my arms, my ability to be alone with my little girl, or to jog along the Hudson River, just to be in charge of my life. But in most ways, I don’t want to go backwards. This month has been busy, but fun. We went to a gingerbread house decorating party yesterday, and Scarlett has a winter sing at school tomorrow. In the mornings, we sit together at the dining room table while she eats a scone and tells me stories. Who said what, who did what. She laughs and uses the words like and dude. She is so different from that feisty baby I remember, and somehow still the same. Read More>

Supermom

Who wants to hear a stupid story? Ready? Scarlett is Superstar of the week at school, which means she filled out a questionnaire about herself, decorated a poster with a life-size tracing of her body, and brought numerous items in to show the class, including her favorite book, which is Harry Potter and the Deathly Hallows (Book 7), but she had to bring in Harry Potter and the Sorcerer’s Stone (Book 1), because 7 is not really appropriate for a class of six- and seven-year-olds. Exhibit A: The first chapter is called The Dark Lord Ascending, and the teacher reads part of the book to the class. Also, a lot of the girls are reading this series, and we didn’t want to ruin anything for those who hadn’t finished yet. So we compromised and sent the first book.

That’s not the stupid story. It’s just the build up.

She’s had a great week as Superstar. Being the center of attention has helped her behave and listen well in general, which she has trouble with, but she’s also six years old so I don’t think that’s terribly abnormal. And last night at dinner she decided she wanted to decorate a small piece of paper with stickers for each girl in her class. There are 21 of them, so not including Scarlett we needed 20 pages.

She set to work and finished 13 last night. This morning she was to do the remaining seven before school. As her carpool was coming, she triumphantly announced that she had 20 pages done. And then she told me she had included the teachers. Which means, for all you math geniuses out there, that two girls were missing. Read More>